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Contact list for those who have had resection surgery:
If you would like to add your name to this contact list, please go here.
Name: Annie
Email: annie5263@hotmail.com
Age: 38
Country: Australia
Surgery: Resection
IBD: Severe form of Endometriosis
More Info: I have just had a Total Abdominal Clearance which included having 1.5 feet of my large Bowel Removed. Three days post-op I was told they need to take me back to theatre for a Total Colectomy and formation of Ileostomy. It is now 8 weeks post-op and I can't find the courage to do it. I am totally housebound due to incontinence. Any-one got any words of
wisdom? When first diagnosised the surgeons kept saying try anything to avoid a stoma. Now they say there is no choice. Is it that bad? What are the negatives?
Name: David Wright
Email: WRIGHTDV1@AOL.COM
Age: 50
Country: Fontana, USA
Surgery: Resection
IBD: UC
More Info: Had most of colon removed 3 years ago. Only a stem. Now scheduled to have the rest of colon and rectum removed. Not sure what surgeon will do until he opens me up. Been on steroids last 3 years unable to get off due to bleeding - any suggestions, please contact. Thank You.
Name: Amelia Fowler
Email: afowler1@midsouth.rr.com
Age: 34
Country: USA
Surgery: Ileostomy and Resection
IBD: CD
More Info: I was diagnosed at 10 years of age. My mother has Crohn's Disease also. I might be able to help parents with children who have been diagnosed with Crohn's.
Name: Joel Robins
Email: J2MRobins@aol.com
Age: 41
Country: Twinsburg, Ohio USA
IBD: CD
More Info: Have had ileostomy surgery as well.
Name: Angela
Email: ATA-189@WEBTV.NET
More Info: Had Laproscopic surgery
on July 1, 1998. Had 12 inches of my small intestines removed, part of
my colon, and my appendix. I am doing quite well. Have to have a
colonoscopy done in two months to see how things are. I wish everyone to
get well. And God is with us all.
Name: Christine
Email:CMaxw96186@aol.com
Country: California, USA
Surgery: Numerous resections and
a colostomy
IBD: Diverticulitis
Age: 49
More Info: I recently underwent
my 4th surgery for diverticulitis. I had my 1st colostomy when I was 41
due to a rupture of my colon from diverticulitis. It was reversed 10 months
later. That didn't work too well.I had numerous attacks over the years
and continued to lose large portions of my colon until I ultimately had
about 2 feet remaining. This last surgery was initially to install an ileostomy,
but the surgeon was unable to do so, as I had so many adhesions that my
abdomen was "frozen". The adhesions had grown together. UGH! So, hence
the colostomy and fistula. The fistula isn't too bad. Just drains and is
a bit bothersome at times. It's amazing what people can adjust to!
Name: Flyfisher (aka Kell)
Country: USA
Email: kellymd@ibm.net
ICQ Contact Number: 11138768
Surgery: 2 resections
IBD: CD
Additional Info: I've had CD since
I was 10 and had two surgeries. I've spent much time in the hospital.I
lead an active outdoor lifestyle and try to make the best of things. I
would enjoy chatting with or e-mail me with any topic or questions you
may have.I am always here if you need support.
